Patient Perceptions Around Quality of Care Through Telemedicine in Neuro-Oncology

Purpose

This study evaluates patient perceptions around quality of care through telemedicine in neuro-oncology. Studying questionnaires related to perceptions quality of care through telemedicine in patients with brain cancer may help doctors to improve the delivery of care through this modality.

Conditions

  • Central Nervous System Neoplasm
  • Leptomeningeal Neoplasm
  • Metastatic Malignant Neoplasm in the Brain
  • Primary Brain Neoplasm

Eligibility

Eligible Ages
Over 18 Years
Eligible Sex
All
Accepts Healthy Volunteers
No

Inclusion Criteria

  • Patients with a CNS tumors: this includes patients with primary brain tumors, brain metastases, and leptomeningeal disease - Established patients with a follow up encounter with Neuro-Oncology at the Brain and Spine Center at the University of Texas MD Anderson Cancer Center; this encounter can be - An in-person visit - A telemedicine appointment

Exclusion Criteria

  • Encounter occurred with the assistance of official language translation support - Patients with telephone encounters (without interactive video) - New patient or consult visits - Neither patient nor caregiver present during the visit are available or able to answer survey questions

Study Design

Phase
Study Type
Observational
Observational Model
Cohort
Time Perspective
Prospective

Arm Groups

ArmDescriptionAssigned Intervention
Observational (survey, medical chart review) Patients complete a survey related to their perceived quality of care via telephone and have their medical chart reviewed prospectively.
  • Other: Electronic Health Record Review
    Review of medical chart
  • Other: Survey Administration
    Complete survey

Recruiting Locations

M D Anderson Cancer Center
Houston, Texas 77030
Contact:
Barbara J O'Brien, MD
713-794-4380
bjobrien@mdanderson.org

More Details

NCT ID
NCT04988009
Status
Recruiting
Sponsor
M.D. Anderson Cancer Center

Study Contact

Barbara J O'Brien, MD
713-794-4380
bjobrien@mdanderson.org

Detailed Description

PRIMARY OBJECTIVE: I. To evaluate the patient-perceived quality of care by group (telemedicine versus in-person visits) in patients with central nervous system (CNS) cancer. SECONDARY OBJECTIVES: I. To characterize the visits provided by telemedicine compared to those in-person. II. To contrast the average time spent on telemedicine visits compared to in-person visits, and the delay between visit order placement and visit occurring. III. To evaluate the domains of patient care addressed on a telemedicine visit versus in-person visit per documentation, including (1) treatment planning, (2) symptom burden, (3) goals of care. IV. To evaluate frequency of acute care sought (through emergency room or urgent care clinic) within 30 days of encounter in telemedicine visit versus (vs) in-person visit. V. The impact of patient and clinical characteristics on perceived quality of care in the context of covariate-adjusted modeling. OUTLINE: Patients complete a survey related to their perceived quality of care via telephone and have their medical chart reviewed prospectively.